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Perhaps the biggest wrench for
a parent or carer of a child with eczema is passing on the care of your child
to someone else. For many of us that first happens when our children start at
school. It is something we all have to cope with and this article is an attempt
to make the transition as easy as possible.
Every case is different
One of the biggest problems
with eczema is that it is such an individual condition. It can vary enormously
in its severity, from person to person and from time to time.
Because
it’s also such a common condition, it’s very likely that your child’s class
teacher will have some previous experience of children who have eczema. But it
is also quite likely that his or
her experience will be of someone with quite mild eczema and that he or she
will not have come across a child with severe eczema. The other problem is that
we all find that our eczema is triggered (and responds) to different things.
This is not a one-size-fits-all condition.
You, however, are about to pass
on the care of your child so you need to be prepared.
Be prepared
First you need to build an
understanding of what it means for your child to have severe eczema. The only
way to do this is by talking to the class teacher and the head teacher. You
will have cared for your child’s eczema and by now you probably know a good
deal about it so you are the best person to explain what needs to be done. But
you need to get yourself ready too. Before you meet the school make a list of everything you need
to cover. Typically this will include:
• Explain how much time is
spent every day just treating the eczema, putting on the creams, taking
emollient baths. This will give the teacher a perspective on how much time is
lost every day because of the eczema.
• The impact on sleep We all know that anyone with
eczema itches unbearably and frequently this is worst at night. Poor sleep is a
common consequence. A child who is up once during the night will be tired in
school the next day. A child who wakes every half an hour scratching will be
exhausted and may need to come into school late on some days so they have time
to catch up on sleep. Performance is obviously affected by poor sleep.
• Treatments
It’s easy to get quite blasé
about eczema treatments, but they are, in fact, complicated as well as time
consuming. Make sure you have a list of everything prescribed for your child
and it’s a good idea to take it along with you. Explain how each treatment is
used.
• Uniforms
These are often the bugbear of
the child with eczema. Wool and synthetic fibres make the itch so much worse.
Remember to explain that and that loose cotton is best.
• Time off
Your child may need to have
time off for medical treatment. Frequent visits to the GP practice, health
visitors and in some cases consultant dermatologist go hand in hand with
childhood eczema. Make sure the school understands this. Less commonly your
child may have been admitted to hospital in the past and if the eczema is
severe could be in future.
If this is the case, mention it
as many teachers (and others) do not appreciate that children with eczema are
admitted to hospital
• Activities
Highlight activities that may
make your child’s eczema worse. These triggers will vary but common ones will
include:
* Getting too hot
This generally provokes a scratching
frenzy (and not just in children) so if your child could not be asked to sit by
a sunny window or the radiator it will help.
* Games and PE
Our own sweat can be a trigger
so it is necessary for a child with eczema to be able to wash using an emollient
after games. (The same goes for swimming and chlorine.) Children with bad
eczema may be sensitive about how they look so privacy for changing is
something you need to mention.
* Art and cookery
These can present challenges. If your child reacts to foods
– by touch as well as when eaten – then make sure the school is
aware of it. Paints, glues and clay can also be problematic. Gloves may be the
answer, but make sure the school knows that PVC gloves are going to be better
than rubber and consider using PVC ones with cotton gloves inside (less sweaty
and irritating).
Try various options out at home
as, if their hands sweat and get itchy, the gloves won’t help.
* Other thoughts
a. Emphasise no soap or hot air hand dryers. Give
your child a cotton towel to take to school to dry their hands on. (If the school has plastic chairs
another towel to sit on is often a good idea.)
b. Sitting on dusty floors and carpets –
maybe during circle items – can also cause unnecessary aggravation. But
if you don’t mention this it’s unlikely the school will realise.
c. Ask if there any pets corners or the like and if
there are explain that house dust mites are a major trigger
for manychildren with eczema. Explore ways in which your child can be kept away
from the pets, hopefully with out feeling excluded.
Stay positive
Stay positive. You will be
listened to much more if you try to think of ways in which your child can take
part, if not in all activities, in most of them. This
will also be reassuring for your child. In practice most children with eczema
can cope well in mainstream schools as long as common sense is applied and
special attention is paid to their physical comfort.
Some
sadly do get teased, although typically this doesn’t happen until they are a bit
older. If this is happening, remember that by and large the other children
aren’t being knowingly malicious. It is part of peer group pressure to ‘pick’
on someone who is or looks different.
Explain
this to your child and work on some coping strategies. Above all make sure the
class and head teacher know what’s happening.
As
well as preparing your self and the school you will need to prepare your child
for their entry into school. It is
natural for you to worry, but essential your child remains unaware of those
fears. It won’t be possible for a
school to give your child the one-to-one attention you have given them up to
now, but by working as a team with the teacher and classroom assistants, you
should be able to make your child’s time at school a happy one so that they can
fulfil their educational potential.
For more information call the National Eczema Society
helpline 0870 241 3604, visit their website www.eczema.org or order one of their free schools packs by phoning the
schools pack order line 0870 240 7183
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